Medically Complex Coordination Clinic

Our Medically Complex Coordination Clinic helps families and pediatricians coordinate care for children with complex medical conditions. This means a dedicated team of Nemours Children's pediatric experts comes together to create a roadmap of care for your child.

The roadmap is a plan that you and your child’s pediatrician can follow to help your child get the best care possible. It will also help your family manage care costs and coordinate appointments — we’ll even help you find resources and support.

Complex medical conditions we can help you manage include:

• Severe cerebral palsy
• Complex cardiopulmonary diseases
• Genetic syndromes that involve more than one area
• Neuromuscular disorders such as spinal muscular atrophy (SMA)
• Problems requiring advanced home care equipment 
• Rare diseases (especially when community support is limited or unavailable)
• Life-limiting conditions

Dedicated Nemours experts help your family and your child’s health care providers with:

• Personalized care plans
• Specialty care prioritization
• Focus on improving quality of life
• Customized emergency information forms

The Medically Complex Coordination Clinic is also a great benefit if your child uses assistive and adaptive medical technology such as:

• Tracheostomy tube — a small hole that surgeons make through the front of the neck and into the windpipe (trachea) to help with breathing
• Gastrostomy tube — when feeding is given through a temporary or permanent opening in the stomach
• Diaper use — beyond the typical toilet training age
• Surgical ostomies — a temporary or permanent opening made to the intestine or other part of the body
• Total parenteral nutrition, or TPN — a way to deliver nutrients through a vein for those who can’t process food by mouth
• Vagal nerve stimulator — a device implanted under the skin in the chest to prevent seizures by sending mild pulses of electrical energy along the vagus nerve to the brain
• Baclofen pumps — small devices implanted under the skin to deliver muscle relaxant medicine to decrease severe muscle contractions 
• Ventilator, home oxygen or other mechanical ventilation assistance device — like CPAP or BiPAP
• Ventriculoperitoneal shunt — a medical device that drains excess fluid in the brain

The Medically Complex Coordination Clinic is led by a pediatrician who has a vast amount of experience managing the special needs of children with complicated health issues. 

Our nurse practitioner is a seasoned expert who has dual certification in neonatology and pediatrics. Other team members include a health and wellness coach to help maximize your child's well-being, and registered dietitians specifically experienced with complex medical conditions.