Cystic Fibrosis Advisory Council
The Cystic Fibrosis Family Advisory Council (CF FAC) at Nemours Children’s Hospital, Delaware is an energetic, optimistic group of parents with children of all ages living with cystic fibrosis (CF). We work closely with the CF care team of pulmonologists, nurses, respiratory therapists, physical therapists, dieticians, and social workers, to help improve the care for all kids with this very complex, high-maintenance pulmonary condition.
- What We Do
- Projects & Initiatives
- Get Involved
- Helpful Resources
- Contact Us
About Our Cystic Fibrosis Advisory Council
Meetings: Quarterly on the third Monday
The CF FAC is here to help families like yours stay informed about their child’s condition, get involved in their child’s medical care, and manage daily living.
As the first hospital/family partnership formed around a specific condition, we’ve accomplished many things, including:
- advocating for processes and procedures that resulted in better care
- developing educational/informational materials for families dealing with a new CF diagnosis
- hosting CF care team appreciation events
- hosting lunch and learn events so parents and caregivers can meet with each other and staff to share information and support