Lymphatics Disease Program

In the past, it was hard for doctors to understand lymphatic disorders because the lymphatic vessels were too small in children for doctors to diagnose. But in recent years, we’ve developed methods of imaging that allow us to watch the vessels in action.

If a vessel is leaking or blocked, we can spot this in real time with imaging tests called “lymphangiography.” We inject a dye into the lymphatic system, either through lymph nodes (small clumps of tissue located along the network of lymph vessels) or through the lymph vessels themselves. Then we watch under a live X-ray called “fluoroscopy” to see what’s going on.

We can now see even more detail by using both X-ray and magnetic resonance imaging (MRI). An MRI is a large doughnut-shaped scanner that gives detailed images using a magnetic field and sound waves instead of radiation.

Once we discover the issue, we have a number of tools and ways to fix lymphatic disorders. If the lymphatic vessel is leaking, we block off the leak. If the vessel is closed off, we can open it. This involves getting into the lymphatic vessels using tiny needles and wires.

During these procedures, the interventional radiology team works closely with cardiologists, pulmonologists and gastroenterologists to help guide the treatment and reduce risks. Interventional radiology is the use of medical imaging techniques (such as an ultrasound, CAT scan or fluoroscopy) to guide doctors as they diagnose and treat problems.

Here’s how our program works:

1. You’ll need to contact our care coordinator, as well as send us your child’s records and any imaging tests on discs.
2. Our team will go over your child’s case together once we receive the required application and medical records. This allows each of our specialists to give their input.
3. We’ll create a “treatment map.”  That just means we’ll all work together to map out the treatment plan that will be best for your child.
4. Our doctors will schedule a phone conference with your family and your home doctors. We’ll explain the plan, and answer any questions you or your doctors may have.
5. We’ll then schedule your visit. Our coordinator will work with you to ensure that a financial plan is in place, travel arrangements are made, and the appointment schedule works for your family.
6. We’ll help prepare you for returning home. After the treatment, the team will ensure you have a copy of all of the imaging and a summary of your child’s care at Nemours to share with your home care providers.

From start to finish, we’ll work with you to make the experience as stress-free as possible for both your child and your family.