Williams Syndrome Program
Expert, Coordinated Care for Kids
Children with Williams syndrome can have issues with elasticity and flexibility in the heart muscles and blood vessels. They’re more likely to have congenital heart disease (a condition they’re born with) and narrowed blood vessels throughout the body.
Nemours Children’s is among a handful of programs in the country to offer integrated, highly specialized care for kids and young adults with Williams syndrome. We’re one of nine programs in the Williams Syndrome Association’s nationwide clinical consortium. This means our team furthers research and develops the standard of care for kids everywhere.
As part of recognized, award-winning heart centers in Delaware and Florida, our cardiology team works with many specialists and surgeons, nutritional counselors, respiratory therapists, rehabilitation therapists and others who know how to help kids with Williams syndrome thrive. Your child gets the highest level of pediatric expertise all in one place.
Together as a team, we watch your child as they grow and develop. We address problems early when treatment may be more effective. We educate your family and listen to you. And we’re here until your child reaches young adulthood.
Our Services
Kids with Williams syndrome can have different problems, like heart valve disorders, irregular heartbeat or narrowing in the blood vessels. Trouble with kidney function, vision, muscles, feeding and swallowing, hearing, learning and development can also happen. We care for it all.
Children do better with a whole team of specialists working together. We customize therapies to your child’s needs, with:
- Heart and vascular condition management with experts in pediatric cardiology, cardiac imaging, interventional cardiology, cardiac anesthesiology, cardiothoracic surgey, nursing, advanced practice medicine and others
- Cardiovascular genetics testing and counseling for the whole family
- Fetal heart care like fetal echocardiograms and care planning for baby after birth if needed
- Cardiac rehabilitation with focused therapies just for kids with heart conditions
- Speech and feeding and swallowing therapies from experienced speech and language pathologists
- Nutritional support to help ensure your child gains weight and has the nutrients they need to grow strong
- Respiratory therapy including breathing exercises, oxygen therapy and machines to help with breathing problems
- Cardiac psychology care to support emotional wellness and behavioral and learning development
We provide the right care, at the right time, sometimes at the same time.
During visits, your child may also see a pediatric ophthalmologist, audiologist, otolaryngologist, gastroenterologist, endocrinologist and nephrologist. As needed, we bring in others like pediatric neurologists, interventional radiologists, orthopedic surgeons, general surgeons and urologists.
Two Leading Pediatric Heart Centers
Our heart centers offer highly advanced, integrated care just for kids and young adults with congenital heart disease. Learn about our focused programs, innovative research and exceptional outcomes.
Heart for Kids
Our heart is in helping kids with Williams syndrome grow strong in mind and body. We work closely with families. We support you and help you find the resources you need. See how we make a difference.
Delayed speech and language is common in kids with Williams syndrome. Learn more from the experts at Nemours KidsHealth®.
Are you heart smart? Learn more about the heart, heart conditions, tests and treatments.
- Learning delays
- Heart Smart
Conditions & Treatments
We see many types of congential heart defects — far too many to list here. The conditions we treat vary depending on the location and providers selected. Don’t see a condition listed? Call us.
Related Specialties
Expert Care You Can Count On
Kids with Williams syndrome get coordinated care from an experienced team. We’re recognized for helping kids reach their highest ability. That’s because we know what to look for and can give the right care at the right time.
8+
Average number of core specialties represented on your care team
100+
Number of patients with Williams syndrome we care for
40
Oldest age, in years, we see patients with congenital heart disease
2
Nationally recognized heart centers, in Delaware and Florida
Twice a year, families come to our hospital in Orlando for arranged visits. You can meet your child’s care team all at once and connect with other families on the same journey.
We bring together an entire team to see your child in one visit. This makes it easier for your family and ensures we’re all on the same page.
As part of a nationwide network that helps further research and set the standard of care for kids with Williams syndrome, everything we do is to help kids live life to the fullest.
We have providers in more than 30 pediatric medical and surgical specialties on-site. Your child gets a broad range of care under one roof.
Expert Care You Can Count On
Kids with Williams syndrome get coordinated care from an experienced team. We’re recognized for helping kids reach their highest ability. That’s because we know what to look for and can give the right care at the right time.
8+
Average number of core specialties represented on your care team
100+
Number of patients with Williams syndrome we care for
40
Oldest age, in years, we see patients with congenital heart disease
2
Nationally recognized heart centers, in Delaware and Florida
We bring together an entire team to care for your child. This makes it easier for your family and ensures we’re all on the same page.
Nemours is part of a nationwide network that helps further research and set the standard of care for kids with Williams syndrome. Everything we do is to help kids live life to the fullest.
We have providers in more than 30 pediatric medical and surgical specialties on-site. Your child gets a broad range of care under one roof.
Care That Goes Beyond Medicine
When your family comes to Nemours, you’re well cared for. We want you to understand your child’s condition and how to help them stay healthy and succeed. We help you find community resources for your family. We also offer many supportive services, like social work, lodging at nearby Ronald McDonald Houses, creative therapies, pet therapy, Child Life programs and much more.
Convenient Follow-Up Appointments by Video
We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.