Osteogenesis Imperfecta (OI)
Nationally Known Osteogenesis Imperfecta Care
Osteogenesis imperfecta (OI), also called “brittle bone disease,” is a rare genetic disorder that affects the formation and strength of bones. Children born with OI have bones that break easily, often with little or no obvious cause. With the proper medical treatment and supportive care, most kids with OI can reach their full potential. At Nemours Children's, our goal is to help kids build bone mass and muscle strength, manage their symptoms and be as active as possible.
Why Choose Us
Nemours has been recognized for delivering advanced pediatric orthopedic care since 1940. Our Osteogenesis Imperfecta Program in Wilmington, Delaware is one of the world’s leading programs for the treatment of OI. And because we’re a system, Nemours offers a dedicated team of experts in more than 30 medical and surgical specialties who come together to create a roadmap of care for children with this rare genetic disorder. We also offer:
- International leaders in pediatric research and care in orthopedics
- World class facilities and innovative surgical techniques
- Coordinated care for your child and family that includes support services, including help with community resources
Florida Highlights
Central Florida
We offer complete orthopedic care for children with osteogenesis imperfecta at Nemours Children’s Hospital, Florida (Orlando), with outpatient appointments at select Nemours specialty care locations.
Our Medically Complex Coordination Clinic is available at Nemours Children’s Hospital, Florida and helps families and pediatricians coordinate care for children with complex conditions like OI.
We offer a comprehensive inpatient and outpatient rehabilitation program at Nemours Children’s Hospital, Florida. It’s one of only four multispecialty pediatric inpatient rehabilitation programs in all of Florida — and the only one in Central Florida.
Northeast Florida
We offer orthopedic care for children with osteogenesis imperfecta at Nemours Children's Health, Jacksonville and our hospital affiliate, Wolfson Children’s Hospital, with outpatient and follow-up appointments available at select Nemours locations.
Northwest Florida
We offer orthopedic care for children with osteogenesis imperfecta at Nemours Children’s Health, Pensacola and our hospital affiliate West Florida Healthcare, with outpatient appointments available at select Nemours locations.
Regional Care Highlights
Delaware Valley Highlights
Delaware/Greater Philadelphia
We offer diagnosis and ongoing care from the top experts in the field in our Osteogenesis Imperfecta Program at Nemours Children’s Hospital, Delaware (Wilmington, Del.).
As members of the Brittle Bones Disorders Consortium (BBD), we offer the latest in research-based care.
Regional Care Highlights
Delaware Valley Highlights
Delaware/Greater Philadelphia
We offer diagnosis and ongoing care from the top experts in the field in our Osteogenesis Imperfecta Program at Nemours Children’s Hospital, Delaware (Wilmington, Del.).
As members of the Brittle Bones Disorders Consortium (BBD), we offer the latest in research-based care.
Florida Highlights
Central Florida
We offer complete orthopedic care for children with osteogenesis imperfecta at Nemours Children’s Hospital, Florida (Orlando), with outpatient appointments at select Nemours specialty care locations.
Our Medically Complex Coordination Clinic is available at Nemours Children’s Hospital, Florida and helps families and pediatricians coordinate care for children with complex conditions like OI.
We offer a comprehensive inpatient and outpatient rehabilitation program at Nemours Children’s Hospital, Florida. It’s one of only four multispecialty pediatric inpatient rehabilitation programs in all of Florida — and the only one in Central Florida.
Northeast Florida
We offer orthopedic care for children with osteogenesis imperfecta at Nemours Children's Health, Jacksonville and our hospital affiliate, Wolfson Children’s Hospital, with outpatient and follow-up appointments available at select Nemours locations.
Northwest Florida
We offer orthopedic care for children with osteogenesis imperfecta at Nemours Children’s Health, Pensacola and our hospital affiliate West Florida Healthcare, with outpatient appointments available at select Nemours locations.
Publications
Our researchers are renowned and respected leaders. Each year, we publish hundreds of articles in peer-reviewed journals. Our knowledge furthers global understanding of childhood diseases and improves kids’ health.
Research Partners
We partner with recognized academic, scientific and medical institutions and agencies who share our mission. Joining forces with regional and national leaders expands our reach and ability to change lives.